We have now completed one full week of no exercises: and everything is still going well!
The therapist suggested giving H a break from exercises for the holidays. At first I was a bit wary, since in the past if we have skipped massages for just 3 days H would have a meltdown. But this time everything stayed the same. I am so thrilled. I think it is another sign that she is closer to normal. I plan to continue the break for another 3 days, then start up the exercises again. That way she will be back in the routine well before school starts again.
As a side note, I have also been letting H have a bit more sugar than usual. And it is not leading to the wild, out-of-control behaviour that has been usual in the past. I am still leary about letting her have lots of sugar though.